303) Healthy siblings (n = 131) of children with type 1 diabetes, cancer, congenital heart disease (CHD) and cystic fibrosis (CF) completed the Child Health Questionnaire and the Sibling Perception Questionnaire. |
PMID:24154844 DOI:10.1177/1367493513503582 |
2015 Journal of child health care : for professionals working with children in the hospital and community |
* Belgian siblings of children with a chronic illness: Is their quality of life different from their peers? |
- To assess Belgian siblings' self-reported quality of life (QoL) and the impact of illness on four different paediatric illnesses. Healthy siblings (n = 131) of children with type 1 diabetes, cancer, congenital heart disease (CHD) and cystic fibrosis (CF) completed the Child Health Questionnaire and the Sibling Perception Questionnaire. Results were compared to those of a matched group of siblings of healthy children. Siblings reported a good QoL, similar to controls, with the exception that siblings reported better on the QoL domain pain (p < .01). QoL was not related to time since diagnosis but the impact of illness was higher nearer to the time of diagnosis (r = -.39, p < .001). QoL of siblings of children with CHD or cancer was lower than QoL in the CF or type 1 diabetes group whilst impact of illness was highest for the CHD group. QoL of siblings of a child with a chronic illness is similar to the QoL of peers. Studies investigating siblings' QoL or the impact of illness on siblings should include the day-to-day demands of the illness as well as less obvious illness-related issues like 'hidden stress' and 'sense of control'. |
(1)100 *null* | (17)4 (PD) | (33)3 to | (49)2 condition, |
(2)39 and | (18)4 activity | (34)2 (CHD) | (50)2 development |
(3)16 is | (19)4 outcome | (35)2 (COPD) | (51)2 interval |
(4)13 in | (20)4 severity, | (36)2 (CVD), | (52)2 many |
(5)12 of | (21)4 the | (37)2 (GERD) | (53)2 multi-sectoral |
(6)9 (FMD) | (22)4 who | (38)2 (LSD) | (54)2 on |
(7)8 risk | (23)3 (CAD) | (39)2 (SC) | (55)2 onset |
(8)7 severity | (24)3 compared | (40)2 Control | (56)2 onset, |
(9)6 progression | (25)3 control | (41)2 activity, | (57)2 outbreaks |
(10)6 that | (26)3 course | (42)2 are | (58)2 patterns |
(11)6 was | (27)3 free | (43)2 as | (59)2 phobia |
(12)5 (CVD) | (28)3 has | (44)2 associated | (60)2 prevention |
(13)5 or | (29)3 management | (45)2 burden | (61)2 processes |
(14)5 state | (30)3 may | (46)2 by | (62)2 progression, |
(15)4 (AD) | (31)3 patients | (47)2 can | (63)2 surveillance |
(16)4 (HD) | (32)3 states | (48)2 characterized | (64)2 usually |
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